I’m really struggling, and I just want to be heard. Please hear me. Please don’t be offended.
I need to vent.
This is me angry. I’m not angry at you. Please keep that in mind. I just need someone to hear me say all of this. I need it out. I need it said. You’re my readers, so I’m having faith in you that you will still follow me after you read all this mess that I just want out of me.
I almost feel like I don’t have a right to complain about my circumstances, but fuck it, I need to do it. Some things feel like poison if you keep them inside. My therapist says “Some things just need to be said.”
I am angry.
I’m angry that I’m not autonomous. There are so many “normal” things that most people take for granted that I just can’t do. And since I don’t look sick, people around me assume I can do normal, daily things like
- drive: It’s too dangerous. I’ve been in two car accidents, and now when I get behind the wheel I get terrified and tremble. My family is also uncomfortable with me driving. I haven’t driven a vehicle in over a year.
- walk through a grocery store without having my soul catch fire with anxiety, which usually triggers a dissociative dysphoric episode: It leaves me confused and dumb, unable to complete simple tasks. When I dissociate, I lose my rights as an autonomous adult: I am not allowed to use knives, the stove, or our gas heaters (our only source of heat, so if I’m by myself, I just stay cold). It’s not safe for me to wash the dishes. I can’t plug in or unplug appliances because it’s too dangerous. I can’t go for a walk by myself because I might get lost. All of this, triggered by 20 minutes in a grocery store.
- have any sort of conflict without shaking like a leaf for hours afterward: In any scenario involving someone having a negative feeling that I caused or a scenario in which I’m nervous or feel judged, my hands start to shake. Actually, my whole body shakes, but the tremors in my hands are the most visible. I’ve had people tell me to calm down and not be so nervous. I lie and say I have a tremor from a seizure disorder. It’s close to true, but not the truth.
- have any strong feeling without crying: this is typical of dissociative disorders, which I learned about recently, when my doctor added “dissociative disorder” to my official diagnosis. It is very inconvenient, and even more embarrassing. I can’t stop it. A very strong feeling can make me cry anywhere: the store, out to dinner, in a movie theater, in the mall, at the salon… I can’t escape it, and it hits me hard where the self-esteem lives. It makes me feel like a child if I’m in front of other people. These strong feelings, followed by crying, usually lead to the same kind of episode I described in the grocery store.
- remember anything about a movie a few days after I watched it: I have no retention. I forget everything. When my husband mentions a movie, I hardly ever know anything about it and have no clue whether I’ve seen it or not. Last night, we watched a comedy special that I had already seen 3 times, but I was convinced that we were watching a slightly altered movie because parts of it were completely new to me.
- remember a date with a friend even if it was important to me: Like I said, I forget everything. This includes friend dates and family dinners at my parents’ house. I can be told the day before and still forget and miss the meeting. For doctors’ appointments, I write down the appointment on the paper calendar on the wall and put a reminder in my phone. It’s not so easy to remember to put every date in my phone right away. That’s a skill I’m trying to cultivate because at least I have that little bit of control.
I can’t do these things. And these are only some my limitations. These are all part of my disability. If I’m being measured by healthy standards, I will always fall short of what I “should” be. I will always fail.
I don’t want to be measured by healthy standards because I don’t want to be a disappointment or a failure. But I don’t get to choose how I’m measured. I can live up to my own expectations all I want, it doesn’t stop me from being a problem for other people.
I need you to hear this because I need SOMEONE to hear this. It’s exhausting to constantly be failing in the eyes of others, especially when I am absolutely powerless to change the scope of my abilities. I didn’t ask for this, I did not choose this for myself, but I’m responsible for it and it’s something that becomes a problem for the people that I love. And it’s a problem I can’t fix. I can apologize all I want and still be stuck in the limbo of watching other people get disappointed or irritated or angry with me over things that I can’t change.
I fight to get healthy and stay healthy because I know that if I don’t fight, if I don’t keep this as under-control as possible, it will exhaust my support system and people will start giving up on me. I don’t want to be put in care because I have no one left who can put up with me. If I did not stay on top of my pill schedule, keep my blood sugar level, exercise, go to all my therapy appointments, use coping skills to get through most of the day, and do everything I can to keep this under control, I would lose everything.
To people on the outside, I’m sure it looks like I have it extremely easy. No job. Not many bills. There’s nothing I can do to change that perception outside of telling people the reality of my situation one person at a time and trying to find a way for them to relate to things they’ve never experienced. But I don’t know how to communicate what a dissociative episode is like. I can’t bottle the essence of dysphoric mania. I can’t describe the terror of delusions and paranoia. Sure, I can describe a hallucination, but the relatability stops there, at the physical. How could they possibly know how it feels to be hungry but do not know how to make food, or even what I can eat? How could they know how it feels to be terrified of making even a tiny decision, like which candy to buy? Or to be cold and be afraid to light the gas heater? Or to have to rely on the emotional and monetary charity of others daily, just to survive? Or to watch myself upset people over and over in so many different ways because of things that I am responsible for but not able to change?
This is not a pity party. This is an expression of anger. I’m angry at my circumstances and my brain. I’m angry at my limitations. I’m angry at my life. I’m angry because most people don’t understand that by healthy standards, I am always going to fail. These are things that I need to be said, and I’m also angry because I don’t think this will be well-received, and may even fall on deaf ears. If you’re still reading, thank you for falling down this hole with me. It’s dark and lonely down here. Knowing that someone will read this is what is sustaining me today.
I don’t deal well with anger. I don’t deal well with any strong feeling. I can’t help it. I’m getting ready to double up on therapy to try to get more control, faster. I know I’m exhausting my support system. What the fuck am I supposed to do? Just continue to fuck up and continue to say I’m sorry and ask for forgiveness? I don’t see any options. Just the shitty, shitty status quo. But I don’t know what to do. I don’t know how to fix it. So I’m sitting here, terrified of losing everyone, terrified of exhausting everyone, terrified of hurting everyone. I’m scared. I want to fix it. I want to fix myself. I’m trying, I promise I’m trying. And I’ll keep trying. I’m so tired of saying “I’m sorry.”
I know I just have to keep moving forward. Therapy helps me gain some control over my feelings and thoughts, but not the chemicals in my brain. My self-esteem is shot to shit right now, so I’ve got to build that back up. I feel worthless. I’ll keep doing what I can to change.
Post-Script: I wrote this during a dissociative and mixed-state episode, and it began as a letter to my partner. I decided to edit and then publish it even though I’m worried that it may be offensive to some people. Not everything in this is objectively true: my partner assures me (he’s an honest person when it comes to my shortcomings) that I’m not exhausting him or my support system. The problem with incorrect thinking inspired by negative feelings is that I believe all of the horrible things I tell myself, which increases my fear and despair. In the moment I wrote this, none of it felt like hyperbole. In the moment, I was sure I’d lose my partner, my family, and my friends because I was too large a burden and not worth the effort. Self-esteem is a bouncing ball for me, and that day, I was on the floor.
If you live with mental illness, please, please recognize that your thoughts lie to you when you feel bad. They can make you feel worthless. They can make you believe horrible things about yourself and your life that are simply not true. You eventually see that when you come out the other side. If you’re stuck right now in a place where you hate yourself and think other people hate you too, and if it might be a while before you see daylight again, you’re going to have to take your own thoughts and beliefs with a grain of salt. That grain of salt is “I cannot be sure this is objectively true. No matter how true it feels, I cannot be sure it’s true.” Take those thoughts and beliefs to someone else to help you confirm or deny the truth of your beliefs. Then, trust that person to tell you the truth. This takes some practice and some courage, but asking others to help you fact-check is amazingly therapeutic. I had to take these feelings to my partner in order to figure out what was true and what wasn’t.
I’m not worthless, and I’m not exhausting anyone. The rest, unfortunately, is true.